My niece has leukemia (update: Aveolar Rhabdomyosarcoma) and just need to vent
Jun 26, 2023, 7:50 pm
#91
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Jul 5, 2023, 4:26 pm
#93
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A small update:
She is currently 2 days home then 2 days in the hospital for Chemo. She can see in both eyes, but she gets bad headaches. She's doing her best to stay active but because of the headaches and lower back pains she stays in bed. She hasn't needed a transfusion in a bit.
She is super depressed and has a lot of mood swings. She can be happy then sad with the snap of a finger. I currently shaved my head so she isn't the only bald one. She didn't like how I looked. It's kind of chilly with no hair.
She is currently 2 days home then 2 days in the hospital for Chemo. She can see in both eyes, but she gets bad headaches. She's doing her best to stay active but because of the headaches and lower back pains she stays in bed. She hasn't needed a transfusion in a bit.
She is super depressed and has a lot of mood swings. She can be happy then sad with the snap of a finger. I currently shaved my head so she isn't the only bald one. She didn't like how I looked. It's kind of chilly with no hair.
Jul 12, 2023, 6:50 pm
#94
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Some bad news, while she is mostly home now rather than in the hospital, she has developed Nystagmus which is uncontrollable movements of the eyes. She's staying at my house in the DR (I am not there won't arrive until the 1st of august) but she's at my house because less people can visit and bother her there. Where she lived the neighbors would come by a lot and it was starting to stress her out, even though the neighbors meant well, it was becoming an issue for her.
She also has developed gallstones which they blame on the Chemo. According to my wife Shes in good spirits listing to shows on Netflix. She is eating more than what she use too, and she's not in much pain as before. Doctors really haven't said much and if they have her father hasn't relayed the message, He has kind of gone silent on the issue family is upset with him about that, but we can't really force him to say or do anything.
She also has developed gallstones which they blame on the Chemo. According to my wife Shes in good spirits listing to shows on Netflix. She is eating more than what she use too, and she's not in much pain as before. Doctors really haven't said much and if they have her father hasn't relayed the message, He has kind of gone silent on the issue family is upset with him about that, but we can't really force him to say or do anything.
Jul 17, 2023, 1:09 pm
#95
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It was movie night on Saturday, her brothers came over and they watched movies on Disney and Netflix for a few hours. She kinda looks cool with her sunglasses. Bright light bothers her so she wears the sun glasses pretty much 24/7.
Jul 25, 2023, 7:36 am
#96
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She had a round of Chemo which kept her in the hospital for a few days, she was released yesterday and was taking immediately to a river to relax and enjoy the water. I have a video but can't upload it as it's not an accepted file type. But she pretty much just sat in a chair eating some chips. Did upload a screenshot of the video.
Chemo seems to make her super nauseous, but she does have an appetite which is good. And she's always cold which is I assume is because of the anemia she has.
Chemo seems to make her super nauseous, but she does have an appetite which is good. And she's always cold which is I assume is because of the anemia she has.
Oct 8, 2023, 3:43 pm
#97
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Haven't updated this post in a while because it became to emotional for me.
But with a heavy heart I would like to share that Yessy has passed away. She just celebrated a birthday on the 26th of September, and we were able to enjoy her smiles as nurses in the hospital sang her happy birthday.
Thank you everyone who kept her in their prayers.
But with a heavy heart I would like to share that Yessy has passed away. She just celebrated a birthday on the 26th of September, and we were able to enjoy her smiles as nurses in the hospital sang her happy birthday.
Thank you everyone who kept her in their prayers.
Oct 8, 2023, 3:46 pm
#98
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Haven't updated this post in a while because it became to emotional for me.
But with a heavy heart I would like to share that Yessy has passed away. She just celebrated a birthday on the 26th of September, and we were able to enjoy her smiles as nurses in the hospital sang her happy birthday.
Thank you everyone who kept her in their prayers.
But with a heavy heart I would like to share that Yessy has passed away. She just celebrated a birthday on the 26th of September, and we were able to enjoy her smiles as nurses in the hospital sang her happy birthday.
Thank you everyone who kept her in their prayers.
Oct 8, 2023, 3:47 pm
#99
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Haven't updated this post in a while because it became to emotional for me.
But with a heavy heart I would like to share that Yessy has passed away. She just celebrated a birthday on the 26th of September, and we were able to enjoy her smiles as nurses in the hospital sang her happy birthday.
Thank you everyone who kept her in their prayers.
But with a heavy heart I would like to share that Yessy has passed away. She just celebrated a birthday on the 26th of September, and we were able to enjoy her smiles as nurses in the hospital sang her happy birthday.
Thank you everyone who kept her in their prayers.
Oct 8, 2023, 4:06 pm
#100
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Haven't updated this post in a while because it became to emotional for me.
But with a heavy heart I would like to share that Yessy has passed away. She just celebrated a birthday on the 26th of September, and we were able to enjoy her smiles as nurses in the hospital sang her happy birthday.
Thank you everyone who kept her in their prayers.
But with a heavy heart I would like to share that Yessy has passed away. She just celebrated a birthday on the 26th of September, and we were able to enjoy her smiles as nurses in the hospital sang her happy birthday.
Thank you everyone who kept her in their prayers.
Oct 12, 2023, 8:53 am
#105
Join Date: Sep 2000
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Haven't updated this post in a while because it became to emotional for me.
But with a heavy heart I would like to share that Yessy has passed away. She just celebrated a birthday on the 26th of September, and we were able to enjoy her smiles as nurses in the hospital sang her happy birthday.
Thank you everyone who kept her in their prayers.
But with a heavy heart I would like to share that Yessy has passed away. She just celebrated a birthday on the 26th of September, and we were able to enjoy her smiles as nurses in the hospital sang her happy birthday.
Thank you everyone who kept her in their prayers.