Originally Posted by camachinist

Glad to read the delusions trend more to typical AD where it's kind of a pleasant mis-belief or mis-remembrance.

I noted the violence more when the hallucinations (visual and auditory) were more florid and the patient was unmedicated or was being baselined. The research team was big on minimal meds and doing everything precisely because they were analyzing data being gathered on the patient and had to balance research, quality of life and turning her into a zombie with a chemical straightjacket.

Most of the people I met in my walks, including a few patients, were typical AD stuff. Very few LBD caregivers, some vascular dementia and only a tiny minority dealing with what we were. However, it was heartening to connect with real people who were dealing with the disease, as it is often very isolating.

Back when few online resources were out there, I ran an online information forum on ProBoards for a number of years and we attracted thousands of caregivers and even had a EOAD sufferer who was a nurse for a moderator, at least before the disease progressed where she couldn't function. Like the walks and connecting with others, there was a real sense of satisfaction giving back and sharing all the information the research scientists were sharing with us.

Science is hard at work and I have every confidence we'll find effective treatments, maybe even a preventative, in the next generation or two. Brain science is still early times and we're learning so much each day. Every bit can improve the quality of life for people who suffer from this debilitating and fatal disease, even if they can't be cured. Best wishes!