Originally Posted by camachinist

LBD is a bugger. My sympathies. Did the walks for many years while a caregiver but none are nearby to where I moved to recently. Perhaps we can get a local chapter started. Lots of older folks around.

Something else I'd suggest is, at little cost, participate in a research program if one is available. We had the one from UCSF available to us and it was very comprehensive, both physically, psychologically and geneologically and, with permission (yes with us), they autopsy the brain upon death to add to their body of knowledge of the disease and share it with other research facilities world-wide. I'm in the database since dementing diseases run in my maternal side family so can go active if ever afflicted. The research team they threw at us was impressive. However, it does take a lot of time and the testing can be quite daunting.

Our brand was acute paraphrenic dementia. Basically dementia with psychosis. Delusions and hallucinations similar to LBD but trending to the psychotic. An 80-something woman in a psychotic rage can pack quite a wallop

Support options have changed markedly since my caregiving days, for the better IMO. Caregivers, and patients, have more options than ever. It's still tough but communication and information have brought people together. Good luck with the walk!