A belated 'welcome to FT', Cheryl.
Thank you for chiming in, and sorry that you have to go through that. I'm saddened however that so few people report experiences here anymore, and that the responses tend to be like on page 1 that it won't be an issue.
It MAY, and it HAS been an issue for many of us, many times over. Telling posters that it won't isn't fair and doesn't help them to prepare for what may well happen.
Here's an example of the varied experiences with medically necessary liquid:
I have recent experience with this-- I am in EXACTLY the same situation as you, except compounded by the fact that my tube-fed daughter is about to turn 5. I hate to check her formula as well, since it can't be replaced, but I have yet to find a TSA agent who listens and understands when I try to explain to them that it is a medical necessity and can't be bought in stores. They hear 'formula' and that's the only word they hear, and can't understand why a 4-year-old needs it. I have followed TSA’s regulations to the letter for traveling with medical liquids and even always have a copy of those regulations with me, with the relevant portions highlighted, because agents invariably try to tell me restrictions that directly contradict their own policies. My experiences have run the gamut from being waved through with no explanation necessary to having my entire family (including DD4!!) patted down and every single item in every bag swabbed because the formula can't be opened. This last experience led me to open a complaint with TSA since they touched my daughter without my express permission, and the procedure they told me to follow for my next trip was this:
Call TSA Cares (number posted earlier in this thread) at least 72 hours before your flight, and explain your special security needs. They will have someone on hand to meet you at security and expedite you through the line. I haven't actually travelled since getting this advice, so I can't tell you how well it works, but thats the best advice I have.
From a non-American traveller:
TSA is no problem, really. It is part of his medical treatment and thus allowed
I'll have to respectfully disagree. While this is what TSA regulations do indeed say, real-world experience has proven time and time again that it all boils down to the whims of the agent you interact with at your particular airport and you have to be prepared for that. As an example: regulations clearly say that you are allowed an unlimited amount, but I had a TSA agent literally tell me, "you are allowed an unlimited amount, but I'm not letting you just bring as much as you want!"
and then someone follows chollie's suggestion to call the 'TSA cares line':
I called the TSA cares line. It was a joke!!! Literally, he read from the websit and was no able to offer me any additional assistance. He heard formula and went straight to baby...and read exactly what the websit says. I could have explained until I was blue and would've gotten read to off of the website