FlyerTalk Forums - View Single Post - My niece has leukemia (update: Aveolar Rhabdomyosarcoma) and just need to vent
Old May 8, 2023, 7:16 pm
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guv1976
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Originally Posted by HWGeeks
Just a little update.

She is now in intensive care, but her spirits are high and even though she has no appetite she screamed yes when I asked if she wanted McDonalds, so when I get to the DR on Monday I will be buying her 2 happy meals and I promise I won't eat any of it.

Doctors are unsure how to treat her, and even have mentioned sending her home and stopping any future blood transfusions. But then decided to move her to intensive care today.

Her test results for the type of leukemia came back invalid or something, and they have to do it again but because of the blood transfusion she had yesterday they don't want to do the test just yet.
Any progress in getting her transferred to the St. Jude affiliate in the Dominican Republic?

If the doctors ultimately determine that a stem-cell transplant is her best option, you might reach out to this organization, which seems like it could help:

https://icla.org/aboutus/

Edited to add: See, for example, this story:

https://icla.org/finding-a-cure-for-valery/

Last edited by guv1976; May 8, 2023 at 7:29 pm
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